What a dilemma I have.
You see, I typically visit my Rheumatologist every two months to check in on my RA and see how much damage it has caused me. They weigh me (Ouch), take my blood pressure, give me the good ‘ol Pillsbury Boy poke in my belly, probe me, lift my limbs, squeeze some joints, make me open my mouth and say ahhh, send me to the lab for more poking and change my medications if need be. All in a matter of 15 to 20 minutes.
Every six months I go to the hospital for the day to have a Chemo Infusion via an IV. They provide me with a nice comfy bed, Benadryl, Cortisone, anti nausea meds and I go in and out of a very deep Benadryl-induced sleep. Every half hour the IV machine beeps and beeps and beeps alerting the nurse to come check on the ever so slooooowly dripping bag of, let’s call it, poison.
The medicine in the bag, called Rituxan, can also be called miraculous. It is typically given to cancer patients in higher doses but has been known to help with Rheumatoid Arthritis! It is the only medicine that has actually slowed down the erosion of my joints and has given me some relief. Let’s have a round of applause for Rituxan!! Woot! Woot!
It’s not a cure and it’s not perfect, but I’ll take it! I also take quite the cocktail of other drugs to help me function throughout the day.
I am usually a very good patient (kind of). I do as I am told (sometimes). Well, I am also rebellious by nature. You know, don’t tell me what to do kind of girl. For the past 4 months, I have gone on STRIKE! I have taken a sabbatical from visiting ANY doctor.
Like a child who refuses to go to school, I continue to have tantrums and refuse to go. No, no and no! I. Don’t. Wanna.
I figured, I am an adult (sometimes) and I can do as I please. I know, tsk….tsk, you say. Cut me a little slack pretty please, I just get fed up with the whole thing sometimes (woe is me).
Now, I’ve got issues again. Pain in my side, strange growths popping up in my cervical spine from Stenosis, back problems, blah blah blah. I am due for a physical, mammogram, colonoscopy, lab work, you name it…but… I. Dont. Wanna!!!!!! Can almost 50 year olds have tantrums?
I have been perfectly happy ignoring my pains (and blogging – which is almost as miraculous as the Rituxan), taking my Prednisone, Naproxen, Gin, Wine and Chemo. The Cannabis, I am still waiting for my state to get it together after they passed the legalization of the medicinal stuff! You cannot get it yet. What’s taking them sooo long?
Why can’t my body leave me alone??? In peace! Just let me be, you know.
This means I must end my strike (it was fun while it lasted) and push the speed dial button of my many doctors to pay them a visit. I. Don’t. Wanna! I. Don’t. Wanna! I. Don’t. Wanna!
Oh, alright. I will put my big girl underpants on and call on Monday (Grrrr). But, no one can ever take away my Gin, Wine or Cannabis!